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What is the Diabetes Collaborative Registry?

The Diabetes Collaborative Registry is the first global, cross-specialty clinical diabetes registry designed to track and improve the quality of diabetes and cardiometabolic care delivered across the continuum of primary care, endocrinology, cardiology, vascular surgery and more. 

The Diabetes Collaborative Registry brings together compelling, data-rich, clinical assets from multiple health care specialties. It provides a unique, longitudinal view of the presentation, progression, management and outcomes of patients with diabetes as they receive care and treatment from multidisciplinary care teams.

Why was the Diabetes Collaborative Registry created?

Diabetes is a growing global health epidemic. If current trends continue, it is expected that 1 in 3 Americans will develop diabetes during their lifetime. Unfortunately, treating diabetes is complicated because care is not managed by one type of health provider. Patients with diabetes often receive care across medical specialties for multiple related medical conditions. Recognizing a clear need for cross-specialty management of patients with diabetes, the Diabetes Collaborative Registry was created to support the generation of new evidence that can reveal new insights, drive decision-making, and enable better treatment and improved outcomes for those with diabetes around the world.

Who are the Diabetes Collaborative Registry founding partners?

The Diabetes Collaborative Registry is being offered by the American College of Cardiology (ACC) in partnership with the American Diabetes Association (ADA), the American College of Physicians (ACP), the American Association of Clinical Endocrinologists (AACE) and the Joslin Diabetes Center. The registry is sponsored by AstraZeneca (founding sponsor) and Boehringer Ingelheim Pharmaceuticals Inc. As the registry expands both in the United States and around the world, additional partners and collaborators are expected to join.

How does the Diabetes Collaborative Registry work?

Leveraging the well-established technology platform of the ACC’s PINNACLE Registry®, the nation’s largest ambulatory cardiovascular registry, the Diabetes Collaborative Registry builds upon the growing number of patients with diabetes in the PINNACLE Registry and retrieves additional clinical data from electronic health records across a wide spectrum of participating providers involved in the coordinated care, prevention and treatment of diabetes.

Who will benefit from the Diabetes Collaborative Registry?

Diabetes is a chronic condition with a number of comorbidities and complications. All of the partners involved with the Diabetes Collaborative Registry recognize the importance of consolidating efforts and taking an integrated, coordinated and interdisciplinary approach to this real-world problem. The Diabetes Collaborative Registry marks the first-time that clinical “big data” are being used across multiple health care specialty areas to create the evidence needed to provide high-quality prevention, care and treatment options to patients with diabetes.

The Diabetes Collaborative Registry benefits a variety of stakeholders, including:

  • Providers: By tracking adherence to national performance measures at the provider and practice levels, doctors and diabetes care teams can track the quality of care they provide compared to national benchmarks. Participating in the registry provides the opportunity to improve performance against evidence-based diabetes metrics.

  • Practices:More and more practice-based research and quality improvement networks are forming to meet the increasing demand for data-driven efforts that support accelerated clinical trial recruitment, quality improvement initiatives, educational programs and tool kits, and more.

  • Researchers: Clinical and scientific researchers will have access to a huge data repository for inquiry and innovation, as well as ample opportunity for publication of findings in peer-reviewed literature.

  • Industry leaders: Industry leaders can learn from unparalleled market insights within real-world clinical data that can be linked to long-term outcomes in the inpatient setting as well as to commercial and federal administrative data.

  • Payers: Real-world clinical information can offer a pathway to help identify cost drivers and opportunities for improved care that will further the aspiration of achieving the “Triple Aim” of health care – better care, better outcomes and lower costs.

  • Policy makers: In the increasingly regulated health care environment, government leaders and agencies can leverage registry data to inform efforts to improve health outcomes and patient safety; accelerate access to care solutions; improve rates of compliance and surveillance; and, ultimately, impact populations at scale.

    and most importantly…

  • Patients: Improved patient care and outcomes are the primary reasons for why the Diabetes Collaborative Registry was created. Patients benefit by receiving coordinated, quality care that is informed by the latest research and science. 

What types of data and performance measures will be collected in the Diabetes Collaborative Registry?

The Diabetes Collaborative Registry collects data elements that inform a number of national performance measures and are applicable to a broad base of researchers, providers and practice types. The measures and metrics are related to diabetes, cardiovascular disease and cardiometabolic disease management. 

The initial version of the registry draws measures predominantly from existing Physician Quality Reporting System (PQRS) measures that are well-specified, readily available and have been vetted by multiple organizations. As the Diabetes Collaborative Registry evolves and grows, additional programs for federal incentive reporting may be considered in the future.

How can I get a copy of the Data Collection Form and Data Dictionary?

The initial versions of the data collection form and performance metrics are available online.
To download the data collection form and data dictionary, please visit: www.TheDiabetesRegistry.org, and clink on "Get Started" at the top of the page and select "Data Collection." You can also contact us at 800-257-4737 or info@TheDiabetesRegistry.org.

I’m interested in joining the Diabetes Collaborative Registry. How can I participate as a… Practice? Collaborator Organization? Sponsor? Researcher? Interested citizen?

We welcome your interest! For more information, contact us at 800-257-4737 or info@TheDiabetesRegistry.org.